It’s been quite a week for our little heart warrior. After a fun Patriots-themed birthday celebration,
it was time to shift our attention to one of the last big steps toward surgery, his heart cath. After 4 time changes (!) Andrew, John and I left our house around 5am and headed to UVA for a 6:30am check in. It was an early morning but it was worth it as they took him right back. Also, he needed to fast after midnight and this early time made that part easy.
Overall, everything went really well. The doctors were happy with everything they saw. There were no surprises, no intervention was needed and we have no reason to think we can’t go forward with the Fontan surgery on June 13. He also needed to lie still on his back for 4 hours and he did! We saw many answered prayers today!
We also got a taste of how hard the actual surgery is going to be for him. He really struggles with sticky things on his sensitive skin so the EKG leads really upset him. He hated to see anything coming out of his skin, like an IV in his hand, and not having his own clothes on. Unfortunately, it’s going to be much worse after surgery. We met with a Child Life Specialist and she’s working with us to try to prepare him as best we can in this upcoming month. She also gave us some ideas for working through hard emotions with Katie and Ben.
One thing we can always count on to cheer up our John is matchbox cars 🙂
We are so thankful for this guy and for our dear family and friends who are sustaining us through encouragement and prayer.